Kind gesture changes the life of a child facing one of the world’s rarest diseases
Kind gesture changes the life of a child facing one of the world`s rarest diseases
Kind gesture changes the life of a child facing one of the world`s rarest diseases
HUBERTUS -- A kind gesture is changing the life of a child fighting one of the world's rarest diseases. FOX6 News first told you about Maggie Knapp from Hubertus, and her battle with ATS in April.
Maggie suffers
Maggie suffers from Arterial Tortuosity Syndrome (ATS) -- a rare and complex genetic disorder with no cure.
ATS puts Maggie at risk for a stroke or aneurysm -- and makes her easily fatigued. Her mom has been trying for months to get Maggie an adaptive stroller but it costs thousands of dollars, and insurance won't pay for it.
Then she met Brendan Reid.
"It was an incredible coincidence," said Reid.
Reid works for Convaid -- a custom wheelchair manufacturer. His mother-in-law heard about a benefit for Maggie in March and the need for an adaptive stroller. Reid contacted his bosses, and Convaid donated the stroller.
"I would have never imagined a company that big would be so generous on a personal level," said Ginger Knapp, Maggie's mom.
"It is going to let her live a more fulfilling life," said Reid.
Convaid Wheelchair
The stroller reclines to manage Maggie's blood pressure and fatigue.
"It's going to let her rest and recuperate much quicker," said Reid.
The stroller also allows Maggie to keep up with her brother and sister.
"We'll just be able to get out more," said Ginger Knapp.
Maggie has been treated at the Mayo Clinic -- and now by a team of doctors at Children's Hospital.
There are just 10 people in the United States diagnosed with ATS -- two in Wisconsin, including Maggie.
Maggie Knapp